El Materdor43
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Date registered: Feb 13, 2016 17:12:47 GMT
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Post by El Materdor43 on Aug 2, 2018 4:56:04 GMT
Ruthless
I will be lifting up you and your family in prayer. Out last child was a C section, one month early boy. At the 8 month mark, my wife went for a routine check up. The Dr couldn’t find the pulse on the baby. Dr did some things there in his office and found the pulse but sent us on to the hospital. Her ambiotic(?) fluid was low so they admitted her and got ready for a C section. Several hours later he was born and he is now 20. The Dr has some concerns about possible brain damage with him but he hasn’t ever shown any signs.
May God give you, your wife and family comfort
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Shhhhh
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Date registered: Feb 21, 2016 4:21:27 GMT
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Post by Shhhhh on Aug 4, 2018 15:09:40 GMT
They have him starting PT this week, which should be interesting. Never seen PT for an infant lol.
They scheduled an MRI for next month, have to use general anasthesia. Not a fan of that.
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Post by Valkyrie on Aug 4, 2018 16:50:02 GMT
They have him starting PT this week, which should be interesting. Never seen PT for an infant lol. They scheduled an MRI for next month, have to use general anasthesia. Not a fan of that. I hope everything goes well for you, your wife and your little one, I can only imagine the stress as I've never had to be in that position. Genuinely hope all the stuff comes back clear/good news |
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Date registered: Dec 1, 2023 3:00:02 GMT
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Post by Deleted on Aug 4, 2018 17:28:49 GMT
They have him starting PT this week, which should be interesting. Never seen PT for an infant lol. They scheduled an MRI for next month, have to use general anasthesia. Not a fan of that. We took our son for PT at 3 months old. They were really gentle with him. He favored one side and kept his head turned that way most of the time. The therapist held him and gently moved his head and massaged muscles. It worked it out in one visit. He went for an MRI at age 4. I worried so much over them putting iv in his arm, but they didn't even do it that way. They used flavored gas mask. I know you all are concerned. Just try not to do what I did and worry for the weeks up until appointment. |
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Shhhhh
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Posts: 1,313
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Date registered: Feb 21, 2016 4:21:27 GMT
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Post by Shhhhh on Aug 4, 2018 20:42:17 GMT
They have him starting PT this week, which should be interesting. Never seen PT for an infant lol. They scheduled an MRI for next month, have to use general anasthesia. Not a fan of that. We took our son for PT at 3 months old. They were really gentle with him. He favored one side and kept his head turned that way most of the time. The therapist held him and gently moved his head and massaged muscles. It worked it out in one visit. He went for an MRI at age 4. I worried so much over them putting iv in his arm, but they didn't even do it that way. They used flavored gas mask. I know you all are concerned. Just try not to do what I did and worry for the weeks up until appointment. Can't promise my wife won't worry lol. Not too worried about the PT, I was an STNA for several years and am familiar with assisting with PT, but was geriatrics. With his age they will have to put him completely under, wish it was another way around it but those machines make a ton of noise. If if you don't mind my asking, was he diagnosed with anything that led to the testing? |
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Post by Deleted on Aug 4, 2018 21:47:19 GMT
We took our son for PT at 3 months old. They were really gentle with him. He favored one side and kept his head turned that way most of the time. The therapist held him and gently moved his head and massaged muscles. It worked it out in one visit. He went for an MRI at age 4. I worried so much over them putting iv in his arm, but they didn't even do it that way. They used flavored gas mask. I know you all are concerned. Just try not to do what I did and worry for the weeks up until appointment. Can't promise my wife won't worry lol. Not too worried about the PT, I was an STNA for several years and am familiar with assisting with PT, but was geriatrics. With his age they will have to put him completely under, wish it was another way around it but those machines make a ton of noise. If if you don't mind my asking, was he diagnosed with anything that led to the testing? He has eye seizures. |
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Shhhhh
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Posts: 1,313
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Date registered: Feb 21, 2016 4:21:27 GMT
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Post by Shhhhh on Aug 5, 2018 12:49:41 GMT
Can't promise my wife won't worry lol. Not too worried about the PT, I was an STNA for several years and am familiar with assisting with PT, but was geriatrics. With his age they will have to put him completely under, wish it was another way around it but those machines make a ton of noise. If if you don't mind my asking, was he diagnosed with anything that led to the testing? He has eye seizures. Assuming that's related to epilepsy? That sucks I knew someone who was epileptic growing up. With my son we don't know what if anything is wrong, other than they say there was " minor" brain damage from the loss of oxygen. |
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Post by Deleted on Aug 5, 2018 15:41:27 GMT
Assuming that's related to epilepsy? That sucks I knew someone who was epileptic growing up. With my son we don't know what if anything is wrong, other than they say there was " minor" brain damage from the loss of oxygen. All I know is it's some kind of seizure that affects mainly his eyes. I'm sorry Ruthless. I know it's beyond words not knowing what's wrong. Not trying to put the focus on our son either. Just hoped those examples might help you worry less about PT and anesthesia. I would think with an infant they would likely use the gas mask method, but I might be wrong on that. I figured you're having this done at a Children's hospital. With the experiences we've had with our Children's hospital, they're the best of the best when it comes to this stuff. I feel confident he is in good hands. |
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Shhhhh
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Posts: 1,313
Likes: 633
Date registered: Feb 21, 2016 4:21:27 GMT
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Post by Shhhhh on Aug 5, 2018 19:32:51 GMT
Assuming that's related to epilepsy? That sucks I knew someone who was epileptic growing up. With my son we don't know what if anything is wrong, other than they say there was " minor" brain damage from the loss of oxygen. All I know is it's some kind of seizure that affects mainly his eyes. I'm sorry Ruthless. I know it's beyond words not knowing what's wrong. Not trying to put the focus on our son either. Just hoped those examples might help you worry less about PT and anesthesia. I would think with an infant they would likely use the gas mask method, but I might be wrong on that. I figured you're having this done at a Children's hospital. With the experiences we've had with our Children's hospital, they're the best of the best when it comes to this stuff. I feel confident he is in good hands. No worries, I worry about sounding selfish always talking about our boy lol. It bugs me they give me such a wide range of possibilities, one doc told us epilepsy, another cerebral palsy or learning disabilities and then another said he could be perfectly fine. All of them seem to say take the wait and see approach. Might take until he's 5 or 6 to see what if any things wrong. I'm not really that patient. |
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Shhhhh
Captain
Posts: 1,313
Likes: 633
Date registered: Feb 21, 2016 4:21:27 GMT
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Post by Shhhhh on Sept 9, 2018 18:30:06 GMT
Got his MRI results back, turns out he has mild delayed myelination. Which has to do with the sheath that covers his nerves( for ex similar to the coating on wires) and can interfere with movement and/or development. Not sure what it means exactly but will be driving the docs nuts with questions lol.At least it's " mild " so it could always be worse.
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